T21RS Science & Society Symposium 2015

On Sunday 7th of June 2015, the first T21RS Science & Society Symposium took place at the Brain & Spine Institute ICM of the Pitié-Salpêtrière hospital in the heart of Paris.

Programme

• 10:00 - Welcome
  Peter Paul De Deyn (chairman T21RS Committee for Science & Society)

• 10:05 - Introduction to Trisomy 21 Research Society 
  Alain D. Dekker (committee member, treasurer-elect)
  Click here for the PDF of this presentation.

• 10:30 - Association introduction round
  Brief introductions to the key aims, perspectives and intiatives of 13 associations/foundations:

1. Alzheimer's Association ISTAART Professional Interest Area (PIA): DS-AD (USA, international)
   represented by: Cindy Lemere

2. LuMind RDS Foundation (USA)
   represented by: Michael Harpold

3. The Matthew Foundation (USA)
   represented by: John Blascovich and Maddalena Adorno

4. Global Down Syndrome Foundation (USA)
   represented by: Michelle Sie Whitten

5. Fondation Jérome Lejeune (France)
   represented by: Thierry de la Villejegu

6. Trisomie 21 France (France)
   represented by: Cécile Dupas

7. Down Syndrome International (UK, international)
   represented by: Andrew Boys

8. Down España (Spain) & European Down Syndrome Association (Europe)
   represented by: Manuel Velázquez López

9. Fondation AMIPI-Bernard Vendre (France)
   represented by: Remi Cornubert, Marie-Laure Blandin

10. Catalan Down Syndrome Foundation (Catalonia, Spain)
    represented by: Sebastián Videla

11. Association Française pour la Recherche sur la Trisomie 21 (France)
    represented by: Agnes Duguet

12. Hungarian Down Association (Hungary)
     

• 11:30 - Introduction to the T21RS Committee for Science & Society
  Peter Paul De Deyn
  Click here for the PDF of this presentation.

• 11:50 - The Dementia Table Initiative: sharing & improving knowledge about ageing and dementia in people with intellectual disabilities – How to involve relatives and caregivers?
  Sandra Overbeek and Charlotte Thoolen, The Netherlands
  Click here for the PDF of this presentation.

• 12:00 - General discussion about science & society
  Discussion leader: Peter Paul De Deyn