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T21RS Science & Society Symposium 2015

On Sunday 7th of June 2015, the first T21RS Science & Society Symposium took place at the Brain & Spine Institute ICM of the Pitié-Salpêtrière hospital in the heart of Paris.

 

Programme

  • 10:00 - Welcome
    Peter Paul De Deyn (chairman T21RS Committee for Science & Society)

  • 10:05 - Introduction to Trisomy 21 Research Society 
    Alain D. Dekker (committee member, treasurer-elect)
    Click here for the PDF of this presentation.

  • 10:30 - Association introduction round
    Brief introductions to the key aims, perspectives and intiatives of 13 associations/foundations:

  1. Alzheimer's Association ISTAART Professional Interest Area (PIA): DS-AD (USA, international)
    represented by: Cindy Lemere

  2. LuMind RDS Foundation (USA)
    represented by: Michael Harpold

  3. The Matthew Foundation (USA)
    represented by: John Blascovich and Maddalena Adorno

  4. Global Down Syndrome Foundation (USA)
    represented by: Michelle Sie Whitten

  5. Fondation Jérome Lejeune (France)
    represented by: Thierry de la Villejegu

  6. Trisomie 21 France (France)
    represented by: Cécile Dupas

  7. Down Syndrome International (UK, international)
    represented by: Andrew Boys

  8. Down España (Spain) & European Down Syndrome Association (Europe)
    represented by: Manuel Velázquez López

  9. Fondation AMIPI-Bernard Vendre (France)
    represented by: Remi Cornubert, Marie-Laure Blandin

  10. Catalan Down Syndrome Foundation (Catalonia, Spain)
    represented by: Sebastián Videla

  11. Association Française pour la Recherche sur la Trisomie 21 (France)
    represented by: Agnes Duguet

  12. Hungarian Down Association (Hungary)
     

  • 11:30 - Introduction to the T21RS Committee for Science & Society
    Peter Paul De Deyn
    Click here for the PDF of this presentation.

  • 11:50 - The Dementia Table Initiative: sharing & improving knowledge about ageing and dementia in people with intellectual disabilities – How to involve relatives and caregivers?
    Sandra Overbeek and Charlotte Thoolen, The Netherlands
    Click here for the PDF of this presentation.

  • 12:00 - General discussion about science & society
    Discussion leader: Peter Paul De Deyn