21 March is the World Down Syndrome Day, and outreach events and activities are organized around the world. The Trisomy 21 Research Society is strongly committed to this end, and as a part of its program to help organising scientific events on Down syndrome research, has granted two outreach activities.
The Dementia Table
Organiser: Alain Dekker
The Dementia Table is a popular initiative for caregivers and family members of elderly people with intellectual disabilities. These interactive evenings aim is to inform people about the high risk on dementia for people with Down syndrome and provide information from a multidisciplinary perspective, including the latest scientific updates. Moreover, people can share their personal experiences with each other.
The Dutch Dementia Table initiative has been introduced by Sandra Overbeek during the Science & Society Symposium within the T21RS International Conference 2015 in Paris, e.g. see the conference proceedings Delabar et al. (2016) in Molecular Syndromology.
Visit www.sdtg.nl for more information about the next Dementia Table in Groningen (topics: Relation of dental issues to dementia, and palliative care). Website + evening is in Dutch.
Registration is obligatory.
World Down Syndrome Day 2019 – Science for Everyone
Organisers: Frances Wiseman, Rosalyn Hithersay, Sarah Pape, Ana Baburamani, Eva Lana-Elola
University College London, Kings College London, Queen Mary University of London and Francis Crick Institute (LonDownS Consortium)
LonDownS Consortium are an association of researchers working on different aspects of Down syndrome. This year we are organising an afternoon of activities and scientific talks, to explain our research in an accessible and fun way. The event will be held in the in Central London, on Saturday March 23rd. Refreshments will also be provided.
If you would like to come along please email “firstname.lastname@example.org”.
How trisomy of chromosome 21 changes the cell
Heart defects in Down syndrome
The LonDownS study: what we found out
Brain development in babies who have Down syndrome
Getting older when you Down syndrome: how your doctor can help you
Making Memory Books: create a book of memories that are important to you.
Chromosome pairs: pair chromosome cards and talk about chromosomes and trisomy21.
Brain hats: make a brain hat that shows what different parts of the brain do.
Make a brain cell: make a model of a brain cell (from modelling clay) and see it connects to other cells in the brain.
Under the microscope: see what cells and tissues from models of trisomy look like.
3D hearts and brains: see a model of heart and a brain to understand what these parts of our bodies look like and what they do for us.
Besides the two awardees, other activities are also taking place within the framework of the World Down Syndrome Day
Down syndrome: a scientific challenge
Organiser: Mara Dierssen
In collaboration with the network of libraries of Barcelona and Vila Urania, a civic center, we offers a series of six talks in which several scientists in Barcelona will present, in an informative way, the state of research in some aspects related to Down syndrome.
We will present and discuss current and future research areas that may allow discovering the exact neurobiological keys that lead to brain dysfunction in Down syndrome, an essential fact in order to develop possible future treatments. The Catalan Down Syndrome Foundation and the Neurology Service of the Santa Creu and Sant Pau Hospital will also present a health plan that aims to detect and treat Alzheimer's in the framework of DABNI, a pioneer project in the world (link1 and link2).
T21RS encourages you to use the hastags #WorldDownSyndromeDay and #WDSD19 to share and make visible the WDSD activities in social media.