T21RS has launched several initiatives to better understand the risk and to inform appropriate recommendations to protect individuals with Down syndrome against COVID-19. Many of the T21RS members are now part of a T21RS COVID-19 Taskforce. We have been conducting surveys and reviews to better understand the risk.
At T21RS, we are committed to conducting and supporting research needed to understand the following issues:
- Whether individuals with Down syndrome are are more vulnerable to severe outcomes because of co-occurring conditions
- Whether those with Down syndrome are at an increased risk for complications arising in the context of SARS-CoV-2 infection
- Whether there are atypical responses to treatments of COVID-19 among individuals with Down syndrome,
- Whether their response to current vaccines and side effect profiles, are different from other people.
T21RS Statement with regards to vaccinations for people with Down syndrome during the COVID-19 pandemic
T21RS statement regarding COVID-19 booster vaccination for individuals with Down syndrome.
T21RS COVID SURVEY WORKGROUP
- Robert Baloch, Ontario Tech University, Canada
- Stefania Bargagna, Fondazione Stella Maris, Italy
- Ana Brandão, Hospital Israelita Albert Einstein, Sao Paulo, Brazil
- Nicole Baumer, Harvard University and DSMIG representative, USA
- Angelo Carfì, Fondazione Policlinico Universitario A.Gemelli, Italy
- Maria Carmona Iragui, Hospital de la Santa Creu i Sant Pau and Centro Médico Barcelona Down de la Fundación Catalana Síndrome de Down (FCSD) and Co-Chair T21RS Science and Society Committee, Spain
- Brian Chicoine, Advocate Medical Group Adult Down Syndrome Center, USA
- Alberto Costa, Case Western Reserve University and Chair T21RS Clinical committee, USA
- Mara Dierssen, Center for Genomic Regulation and T21RS Past-President, Spain
- Jesus Florez, Fundación Iberoamericana DOWN 21, Spain
- Sujoy Ghosh, Calcutta University, India
- Anke Huels, Emory University (Environmental health and epidemiology), USA
- Monica Lakhanpaul, University College London and DSMIG-UK representative, UK
- Yona Lunsky, University of Toronto, Canada
- Coral Manso, Down España, Spain
- Miguel-Angel Mayer, Hospital del Mar. Instituto de Investigaciones Médicas (GRIB, IPSN), Spain
- Andrew Nowalk, University of Pittsburgh (Infectious diseases), USA
- Eitan Okun, Bar-Ilan University, Israel
- Peter Olbrich, Hospital Universitario Virgen del Rocío, Seville, Spain
- Maria del Carmen Ortega, Hospital 12 de Octubre, Spain
- Susan Pereira Ribeiro, Emory University, USA
- Anne Sophie Rebillat, Lejeune Institute and Co-Chair T21RS Science and Society Committee, France
- Tilman Rohrer, Saarland University, Saarbrücken, Germany
- Diego Ruiz de Asúa, Hospital Universitario de la Princesa, Madrid, Spain
- Martina Sester, Saarland University, Saarbrücken, Germany
- Guissy Sgandurra, Fondazione Stella Maris, Italy
- Stephanie Sherman, Emory University and Co-Chair T21RS Clinical committee, USA
- Andre Strydom, King’s College London and T21RS president, UK
- Rafael de la Torre, Consorci MAR Parc de Salut de Barcelona, Instituto de Investigaciones Médicas IMIM, Spain
- Diletta Valentini, Ospedale Pediatrico Bambino Gesu, Italy
- Chloee Henley, Rollins School of Public Health (MPH student), Emory University, USA
- Lisa Chung, Rollins School of Public Health (PHD student), Emory University, USA
Additional analysis support:
- Dr Asaad Baksh, King’s College London, UK
Student members:
- Patrick Feany, Emory University, USA
- Lauren Russell, Emory University, USA
T21RS COVID IMPACT GROUP
T21RS is helping to co-ordinate research groups that are interested in examining the psycho-social impacts of the pandemic.
- Andrew P. Allen, Trinity College Dublin, Ireland
- Nicole Baumer, Harvard University and DSMIG representative, USA
- Joanne Bell, Syneos Health, USA
- Ruth Brown, Virginia Commonwealth University, USA
- Angelo Carfì, Fondazione Policlinico Universitario A.Gemelli, Italy
- Floriana Costanzo, Ospedale Pediatrico Bambino Gesu, Italy
- Mara Dierssen, Center for Genomic Regulation and T21RS Past-President, Spain
- Sujoy Ghosh, Calcutta University, India
- Domingo González Lamuño, Hospital Universitario Marqués de Valdecilla, Spain
- Matt Janicki, University of Illinois at Chicago; Co-Chair, National Task Group on Intellectual Disabilities and Dementia Practices
- Monica Lakhanpaul, University College London and DSMIG-UK representative, UK
- Yona Lunsky, University of Toronto, Canada
- Mary McCarron, Trinity College Dublin, Ireland
- Darren McCausland, Trinity College Dublin, Ireland
- Stephanie Sherman, Emory University and Co-Chair T21RS Clinical committee, USA
- Andre Strydom, King’s College London and T21RS president, UK
- Stefano Vicari, Ospedale Pediatrico Bambino Gesu, Italy
Student member:
- Gema Milla De La Fuente, University College London, UK
T21RS COVID VACCINATION RESPONSE WORKGROUP
T21RS is supporting efforts to understand the antibody response after vaccination.