On this page, you will find an overview of information about the Trisomy 21 Research Society (T21RS) that has to be published according to the rules and regulations of the Dutch Tax Administration (Belastingdienst) for Public Benefit Organisations. T21RS is recognized by the Dutch Tax Administration as Public Benefit Organisation (in Dutch: Algemeen Nut Beogende Instelling, ANBI).
Trisomy 21 Research Society (T21RS) is a non-profit society (in Dutch: vereniging) established under the laws of the Netherlands, having its registered statutory seat in the municipality of Groningen, and its principal place of business at the Wageningen University & Research, Stippeneng 4, 6708 WE Wageningen, listed in the trade register under number 60501162 (KvK Netherlands Chamber of Commerce number). The articles of association, i.e. the statutes, can be downloaded here.
Statutory name
Trisomy 21 Research Society
Also known as
T21RS
RSIN identification number
853938283
Statutory seat
Groningen, The Netherlands
Registered office/place of business
WUR, Helix 124, Stippeneng 4, 6708 WE Wageningen (Netherlands)
Contact details
Trisomy 21 Research Society: info@t21rs.org
Technical secretariat: secretariatecnicat21rs@bcocongresos.com
Aims
The society is a non-profit scientific organisation, for the promotion of research on Down Syndrome (trisomy 21). For this purpose the society aims: a) to facilitate the interaction between scientists by holding scientific meetings, b) to promote education and training of young researchers (students, PhD students and postdoctoral researchers) interested in Down Syndrome, c) to promote the understanding of, and involvement in Down Syndrome research among the general public, d) to promote the interactions between scientists and patient and family associations, and e) to promote the interactions between scientists and (pharmaceutical) industries.
Executive Board
- President
Dr. William Charles Mobley, University of California, USA - Secretary
Dr. Maria Martinez de Lagran, Center for Genomic Regulation, Barcelona, Spain - Treasurer
Dr. Thessa Hilgenkamp, University of Nevada, Las Vegas
Other board members (committee chairs)
- Dr. Sandra Guidi (Chairperson Committee for Education & Training), University of Bologna, Italy
- Dr. Maria Carmona Iragui (Chairperson Committee for Science & Society), Hospital de la Santa Creu i Sant Pau, Spain
- Dr. Eugenio Barone (Chairperson Committee for Sponsoring & Membership), Sapienza University of Rome, Italy
- Dr. Frances Wiseman (Chairperson Committee for Preclinical Research), Dementia Research Institute Programme, London , UK
- Dr. Alberto Costa (Chairperson Committee for Clinical Research), Case Western Reserve University, Cleveland, Ohio, USA
- Dr. Sahid Zaman (Chairperson Programme Committee), University of Cambridge, UK
Audit Committee
- Yannick Vermeiren, Wageningen University & Research (WUR), The Netherlands
Remuneration policy
Executive Board members do not get paid for their activities for T21RS. They are entitled to reimbursement of costs incurred in the execution of their duties and to non-excessive attendance fees. Board members commit themselves voluntarily and free of charge. T21RS does not currently employ any personnel.
Publication obligation standard form ANBI (Dutch)
See the document here
Annual reports/financial reports
Annual report 2022 (01-01-2022 – 31-12-2022)
Publication date: 15 May 2023.
Annual report 2021 (01-01-2021 – 31-12-2021)
Publication date: 2 May 2022. Unanimous appoval by 154 members with voting rigths attending at the General Assembly held on 9th of June 2022 in Long Beach during the forth T21RS International Conference and including digital votes in the week preceding the General Assembly
Annual report 2020 (01-01-2020 – 31-12-2020)
Publication date: 10 May 2021. Unanimous approval by 68 attending members with voting rights at the General Assembly held on 8th of June 2021 during the 2021 virtual T21RS International Conference.
Annual report 2019 (01-01-2019 – 31-12-2019)
Publication date: 15 June 2020. Unanimous approval by all 11 attending members with voting rights at the General Assembly held on 8th of July 2020, including digital votes in the week preceding the General Assembly.
Annual report 2018 (01-01-2018 – 31-12-2018)
Publication date: 7 May 2019. Unanimous approval by all 132 attending members with voting rights at the General Assembly held on 7th of June 2019 in Barcelona during the third T21RS International Conference.
Annual report 2017 (01-01-2017 – 31-12-2017)
Publication date: 23 May 2018. Unanimous approval by all 54 attending members with voting rights at the General Assembly held on 10th of July 2018, including digital votes in the week preceding the General Assembly.
Annual report 2016 (01-01-2016 – 31-12-2016)
Publication date: 22 February 2017. Unanimous approval by all 105 attending members with voting rights at the General Assembly held on 10th of June 2017 in Chicago during the second T21RS International Conference.
Annual report 2015 (01-01-2015 – 31-12-2015)
Publication date: 19 June 2016. Unanimous approval by all 105 attending members with voting rights at the General Assembly held on 10th of June 2017 in Chicago during the second T21RS International Conference.
Annual report 2014 (17-04-2014 (establishment) – 31-12-2014)
Publication date: 16 June 2015
Current policy plan
In the letter below (dated February 2022), the president of T21RS (Dr. W.Mobley) summarizes the policy plan for 2022/2023.