Webinars for families and clinicians
Research survey resources
The T21RS initiative has led efforts to develop tools to establish the psychosocial impact on individuals with Down syndrome and their families. Here is a list of questionnaires; research groups can email us (firstname.lastname@example.org) if they want to implement any of these studies or questionnaires in their areas.
- Epidemic – Pandemic Impacts Inventory (EPII)—modified for Down syndrome (N. Baumer)
- Survey on the impact of COVID-19 pandemic and lockdown on children under 11 years old who have Down Syndrome (M. Lakhanpaul)
- Cognitive change module – this module can be used alongside the adapted EPII to obtain information from caregivers about cognitive changes during the pandemic in older people with Down syndrome (A. Strydom)
- Down syndrome and COVID-19 (S. Sherman)
Survey of individuals with Down syndrome – Down España has developed a survey to seek the views of individuals with Down syndrome on the impacts of the pandemic. Other organisations that are interested in implementing this survey could contact Coral Manso email@example.com