T21RS is committed to working collaboratively with the Down syndrome community to support research in Down syndrome across the globe.
We are developing capacity and attracting new researchers through our educational activities, and share knowledge and speed up impact by promoting important research findings. We support high quality research in Down syndrome by encouraging dialogue between scientists as well as data sharing and standardization of methods through our preclinical and clinical research committees.
T21RS recomendations for the NIH
The National Institutes of Health (NIH) in the US recently issued a request for information (RFI) in preparation for an update to their Down syndrome (DS) research plan. The T21RS Preclinical and Clinical Committees in collaboration with our Executive Board have submitted a response on behalf of the T21RS’s members. In summary, we recommended support for preclinical and clinical research efforts throughout the lifespan of people with DS, including multiple research themes to address key gaps in knowledge and unmet needs. The recommendations are aimed at using cutting-edge research methods and leveraging our collective resources and expertise to improve the health and quality of life for people with Down syndrome across the world (read more). We will keep our members informed of progress on the updated NIH Down syndrome research plan.