COVID -19 initiative

  • COVID-19 and Down Syndrome on-line survey

    If you care for a person with Down syndrome who is affected with COVID-19, you are invited to complete this survey. Or if you know of others who may be caring for such people, please pass along these links.

    The survey will take about 10-20 minutes to complete. It asks for: 1) general information about the person with DS, 2) their pre-existing conditions, 3) whether they were tested for COVID-19, 4) COVID-19 symptoms, 5) treatments and outcome and 6) response to vaccine.

  • If you are a carer/family member of a person with Down syndrome who tested positive or has signs or symptoms of COVID-19

  • If you are a clinician who has/is caring for a person with Down syndrome who tested positive or has signs or symptoms of COVID-19

T21RS statement on “shielding” or confinement of individuals with Down syndrome during the COVID-19 pandemic

Read the statement

T21RS Statement with regards to vaccinations for people with Down syndrome during the COVID-19 pandemic

Read the statement

T21RS COVID SURVEY WORKGROUP

  • Stefania Bargagna, Fondazione Stella Maris, Italy
  • Nicole Baumer, Harvard University and DSMIG representative, USA
  • Angelo Carfì, Fondazione Policlinico Universitario A.Gemelli, Italy
  • Maria Carmona Iragui, Hospital de la Santa Creu i Sant Pau and Centro Médico Barcelona Down de la Fundación Catalana Síndrome de Down (FCSD)  and Co-Chair T21RS Science and Society Committee, Spain
  • Brian Chicoine, Advocate Medical Group Adult Down Syndrome Center, USA
  • Alberto Costa, Case Western Reserve University and Chair T21RS Clinical committee, USA
  • Mara Dierssen, Center for Genomic Regulation and T21RS Past-President, Spain
  • Jesus Florez, Fundación Iberoamericana DOWN 21, Spain
  • Anke Huels, Emory University (Environmental health and epidemiology), USA
  • Monica Lakhanpaul, University College London and DSMIG-UK representative, UK
  • Coral Manso, Down España, Spain
  • Miguel-Angel Mayer, Hospital del Mar. Instituto de Investigaciones Médicas (GRIB, IPSN), Spain
  • Andrew Nowalk, University of Pittsburgh (Infectious diseases), USA
  • Maria del Carmen Ortega, Hospital 12 de Octubre, Spain
  • Anne Sophie Rebillat, Lejeune Institute and Co-Chair T21RS Science and Society Committee, France
  • Diego Ruiz de Asúa, Hospital Universitario de la Princesa, Madrid, Spain
  • Guissy Sgandurra, Fondazione Stella Maris, Italy
  • Stephanie Sherman, Emory University and Co-Chair T21RS Clinical committee, USA 
  • Andre Strydom, King’s College London and T21RS president, UK
  • Rafael de la Torre, Consorci MAR Parc de Salut de Barcelona, Instituto de Investigaciones Médicas IMIM, Spain
  • Diletta Valentini, Ospedale Pediatrico Bambino Gesu, Italy

 

T21RS COVID IMPACT GROUP

T21RS is helping to co-ordinate research groups that are interested in examining the psycho-social impacts of the pandemic.

  • Andrew P. Allen, Trinity College Dublin, Ireland
  • Nicole Baumer, Harvard University and DSMIG representative, USA
  • Joanne Bell, Syneos Health, USA
  • Angelo Carfì, Fondazione Policlinico Universitario A.Gemelli, Italy
  • Alberto Costa, Case Western Reserve University and Chair T21RS Clinical committee, USA
  • Floriana Costanzo, Ospedale Pediatrico Bambino Gesu, Italy
  • Mara Dierssen, Center for Genomic Regulation and T21RS Past-President, Spain
  • Domingo González Lamuño, Hospital Universitario Marqués de Valdecilla, Spain
  • Monica Lakhanpaul, University College London and DSMIG-UK representative, UK
  • Mary McCarron, Trinity College Dublin, Ireland
  • Darren McCausland, Trinity College Dublin, Ireland
  • Andrew Nowalk, University of Pittsburgh (Infectious diseases), USA
  • Stephanie Sherman, Emory University and Co-Chair T21RS Clinical committee, USA 
  • Andre Strydom, King’s College London and T21RS president, UK
  • Stefano Vicari, Ospedale Pediatrico Bambino Gesu, Italy
  • Karen Watchman, University of Stirling, UK

 

T21RS COVID VACCINATION RESPONSE WORKGROUP

T21RS is supporting efforts to understand the antibody response after vaccination.

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