COVID -19 initiative

  • COVID-19 and Down Syndrome on-line survey

    More needs to be learned about COVID-19 and the related vaccine among people with Down syndrome. We would like to hear from people with Down syndrome or from caregivers who can answer on their behalf.

    Please complete the survey now if you or the person you care for:

    • has received the full dose of COVID-19 vaccine
    • does not plan to receive the vaccine
    • is too young to receive the vaccine

    Please wait to fill out the survey if you or the person you care for:

    • has received only 1 of the 2 required doses of the COVID-19 vaccination
    • plans to receive the all required doses of the vaccine in the next 6 months

    The on-line survey:

    • takes about 15-30 minutes to complete
    • responses cannot be linked back to you (anonymous)
    • questions ask about the person’s health, COVID-19, and responses to the vaccine

  • If have Down syndrome or are a carer/family member of a person with Down syndrome, please click on one of the following links in your preferred language:

  • If you are a clinician who has/is caring for a person with Down syndrome, please click on one of the following links in your preferred language:

T21RS statement on “shielding” or confinement of individuals with Down syndrome during the COVID-19 pandemic

Read the statement

T21RS Statement with regards to vaccinations for people with Down syndrome during the COVID-19 pandemic

Read the statement

T21RS COVID SURVEY WORKGROUP

  • Robert Baloch, Ontario Tech University, Canada
  • Stefania Bargagna, Fondazione Stella Maris, Italy
  • Ana Brandão, Hospital Israelita Albert Einstein, Sao Paulo, Brazil
  • Nicole Baumer, Harvard University and DSMIG representative, USA
  • Angelo Carfì, Fondazione Policlinico Universitario A.Gemelli, Italy
  • Maria Carmona Iragui, Hospital de la Santa Creu i Sant Pau and Centro Médico Barcelona Down de la Fundación Catalana Síndrome de Down (FCSD)  and Co-Chair T21RS Science and Society Committee, Spain
  • Brian Chicoine, Advocate Medical Group Adult Down Syndrome Center, USA
  • Alberto Costa, Case Western Reserve University and Chair T21RS Clinical committee, USA
  • Mara Dierssen, Center for Genomic Regulation and T21RS Past-President, Spain
  • Jesus Florez, Fundación Iberoamericana DOWN 21, Spain
  • Sujoy Ghosh, Calcutta University, India
  • Anke Huels, Emory University (Environmental health and epidemiology), USA
  • Monica Lakhanpaul, University College London and DSMIG-UK representative, UK
  • Yona Lunsky, University of Toronto, Canada
  • Coral Manso, Down España, Spain
  • Miguel-Angel Mayer, Hospital del Mar. Instituto de Investigaciones Médicas (GRIB, IPSN), Spain
  • Andrew Nowalk, University of Pittsburgh (Infectious diseases), USA
  • Eitan Okun, Bar-Ilan University, Israel
  • Peter Olbrich, Hospital Universitario Virgen del Rocío, Seville, Spain
  • Maria del Carmen Ortega, Hospital 12 de Octubre, Spain
  • Susan Pereira Ribeiro, Emory University, USA
  • Anne Sophie Rebillat, Lejeune Institute and Co-Chair T21RS Science and Society Committee, France
  • Tilman Rohrer, Saarland University, Saarbrücken, Germany
  • Diego Ruiz de Asúa, Hospital Universitario de la Princesa, Madrid, Spain
  • Martina Sester, Saarland University, Saarbrücken, Germany
  • Guissy Sgandurra, Fondazione Stella Maris, Italy
  • Stephanie Sherman, Emory University and Co-Chair T21RS Clinical committee, USA 
  • Andre Strydom, King’s College London and T21RS president, UK
  • Rafael de la Torre, Consorci MAR Parc de Salut de Barcelona, Instituto de Investigaciones Médicas IMIM, Spain
  • Diletta Valentini, Ospedale Pediatrico Bambino Gesu, Italy

Additional analysis support:

  • Dr Asaad Baksh, King’s College London, UK

Student members:

  • Patrick Feany, Emory University, USA
  • Lauren Russell, Emory University, USA

T21RS COVID IMPACT GROUP

T21RS is helping to co-ordinate research groups that are interested in examining the psycho-social impacts of the pandemic.

  • Andrew P. Allen, Trinity College Dublin, Ireland
  • Nicole Baumer, Harvard University and DSMIG representative, USA
  • Joanne Bell, Syneos Health, USA
  • Ruth Brown, Virginia Commonwealth University, USA
  • Angelo Carfì, Fondazione Policlinico Universitario A.Gemelli, Italy
  • Floriana Costanzo, Ospedale Pediatrico Bambino Gesu, Italy
  • Mara Dierssen, Center for Genomic Regulation and T21RS Past-President, Spain
  • Sujoy Ghosh, Calcutta University, India
  • Domingo González Lamuño, Hospital Universitario Marqués de Valdecilla, Spain
  • Matt Janicki, University of Illinois at Chicago; Co-Chair, National Task Group on Intellectual Disabilities and Dementia Practices
  • Monica Lakhanpaul, University College London and DSMIG-UK representative, UK
  • Yona Lunsky, University of Toronto, Canada
  • Mary McCarron, Trinity College Dublin, Ireland
  • Darren McCausland, Trinity College Dublin, Ireland
  • Stephanie Sherman, Emory University and Co-Chair T21RS Clinical committee, USA 
  • Andre Strydom, King’s College London and T21RS president, UK
  • Stefano Vicari, Ospedale Pediatrico Bambino Gesu, Italy

Student member:

  • Gema Milla De La Fuente, University College London, UK

T21RS COVID VACCINATION RESPONSE WORKGROUP

T21RS is supporting efforts to understand the antibody response after vaccination.

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