T21RS initiatives on COVID-19

The T21RS has launched several initiatives to better understand the risk and to inform appropriate recommendations to protect individuals with DS against COVID-19.
T21RS’s COVID-19 Task Force has released the second results of the survey of COVID-19 in people with Down syndrome of all ages (https://www.t21rs.org/results-from-covid-19-and-down-syndrome-survey/). From 577 responses obtained from caregivers and clinicians of children and adults with DS, the task force has developed some takeaways about symptoms and who is at risk as they push for more data by expanding the survey’s reach.

The survey was developed with the financial and dissemination support of Down Syndrome Affiliates in Action (DSAIA), Down Syndrome Medical Interest Group-USA (DSMIG-USA), GiGi’s Playhouse, Jerome Lejeune Foundation, LuMind IDSC Foundation, Matthew Foundation, National Down Syndrome Society (NDSS), National Task Group on Intellectual Disabilities and Dementia Practices (NTG); the T21RS is grateful for their support.  Many other international Down syndrome organizations are members of the Task Force’s stakeholders group; we are grateful for their input.

T21RS continues to collect vital information to understand the risks and course of COVID-19 among people with Down syndrome (DS). Links to the survey in several languages are available here: https://www.t21rs.org/covid-19/.  There is a family version and a clinicians version of the survey; please help us to disseminate the survey to clinicians and Down syndrome families.   

We hope that this information will help identify who is at the greatest risk and how to better protect them.