On Sunday 7th of June 2015, the first T21RS Science & Society Symposium took place at the Brain & Spine Institute ICM of the Pitié-Salpêtrière hospital in the heart of Paris.
Program
- 10:00 – Welcome
Peter Paul De Deyn (chairman T21RS Committee for Science & Society) - 10:05 – Introduction to Trisomy 21 Research Society
Alain D. Dekker (committee member, treasurer-elect)
Click here for the PDF of this presentation. - 10:30 – Association introduction round
Brief introductions to the key aims, perspectives and intiatives of 13 associations/foundations:
- Alzheimer’s Association ISTAART Professional Interest Area (PIA): DS-AD (USA, international)
represented by: Cindy Lemere - LuMind RDS Foundation (USA)
represented by: Michael Harpold - The Matthew Foundation (USA)
represented by: John Blascovich and Maddalena Adorno - Global Down Syndrome Foundation (USA)
represented by: Michelle Sie Whitten - Fondation Jérome Lejeune (France)
represented by: Thierry de la Villejegu - Trisomie 21 France (France)
represented by: Cécile Dupas - Down Syndrome International (UK, international)
represented by: Andrew Boys - Down España (Spain) & European Down Syndrome Association (Europe)
represented by: Manuel Velázquez López - Fondation AMIPI-Bernard Vendre (France)
represented by: Remi Cornubert, Marie-Laure Blandin - Catalan Down Syndrome Foundation (Catalonia, Spain)
represented by: Sebastián Videla - Association Française pour la Recherche sur la Trisomie 21 (France)
represented by: Agnes Duguet - Hungarian Down Association (Hungary)
- 11:30 – Introduction to the T21RS Committee for Science & Society
Peter Paul De Deyn
Click here for the PDF of this presentation. - 11:50 – The Dementia Table Initiative: sharing & improving knowledge about ageing and dementia in people with intellectual disabilities – How to involve relatives and caregivers?
Sandra Overbeek and Charlotte Thoolen, The Netherlands
Click here for the PDF of this presentation. - 12:00 – General discussion about science & society
Discussion leader: Peter Paul De Deyn