COVID-19 and Down syndrome survey

 

Acknowledgments: Trisomy 21 Research Society (T21RS) COVID-19 Taskforce developed the survey, with the financial and dissemination support of Down Syndrome Affiliates in Action (DSAIA), Down Syndrome Medical Interest Group-USA (DSMIG-USA), GiGi’s Playhouse, Jerome Lejeune Foundation, LuMind IDSC Foundation, Matthews Foundation, National Down Syndrome Society (NDSS), and the National Task Group on Intellectual Disabilities and Dementia Practices (NTG).

These and many other international Down syndrome organizations are members of the T21RS COVID-19 stakeholders advisory group, including Global Down syndrome (USA), DSA (UK), DSMIG (UK), DSMIG (USA), DSRF-UK, DSi, DSE international, Trisomie21-France, Down España, National Down syndrome congress (NDSC), Down Madrid, FCSD (Spain), EDSA, Royal College of Psychiatrists (UK), CoorDown (Italy), AIPD (Italy), AFRT (France), Fundación Iberoamericana Down 21 (Spain), FIADOWN (Latin America),  Deutsches Down-Syndrom InfoCenter (Germany), Down Syndrome Resource Foundation (Canada) and Canadian Down Syndrome Society (Canada).

We also wish to thank the many families and clinicians who contributed to the survey

COVID-19 vaccination in people (>12 years) with Down syndrome: results from the T21RS survey

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Infographic created November 2021

COVID-19 in children (<18 years) with Down syndrome: results from the T21RS survey

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Infographic created July 2021

COVID-19 and Down syndrome: results from the T21RS survey

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Report from October 22, 2020

Report from July 24, 2020

Report from May 27, 2020

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